Big Data, Big Implications:
Data Protection in Biomedicine
4 July - 8 July 2022 hosted at the University of Barcelona, Spain followed by a short virtual collaboration exercise The call for applications is now CLOSED
THEME SUMMARY
Due to the increasing importance of the exploitation of Data in health and in order to unleash the full potential of health data, an establishment of the European Health Data Space is being discussed.
Some new concepts challenge our existing ethical and regulatory framework including the exploitation of medical records, the use of research data, the introduction of new technologies such as Artificial Intelligence (AI). Patient’s data are used and reused for many different purposes and common concepts as informed consent, control and ethical oversight, require revision.
While the development of safe spaces to use data for health is of fundamental importance for the European Union, the new data science and AI technologies raise some issues regarding their ethical, societal and legal implications that need to be addressed. These include issues concerning fair access, control, privacy, transparency, security, accountability and justice.
This Summer School offered a unique set of lectures and activities enabling participants to familiarize themselves with the value chain of ethical, social and legal considerations in the field of Biomedical Big Data (BBD) driven developments.
WHY THE DATAETHICS SUMMER SCHOOL
This 5-day course offered a unique opportunity to listen to lectures from leading and established cross-disciplinary experts in data curation and privacy, Data use, ethics, biomedicine, and related fields. Through a matrix of lectures, interactive sessions and small group assignments, we created a flexible environment allowing for students to acquire new knowledge framed around a dilemma story. This approach furthered the ability of students to apply newly-gained knowledge in true-to-life scenarios. The course also offered ample opportunities for networking with peers and thematic experts from different leading European medical institutions, as well as external speakers from academia and industry.
During the school the participants debated the significance of coupling ethical with scientific considerations of the curation and handling of biomedical data, and learned about the latest developments in data science, bioinformatics, and AI in (bio)medicine.
Some of the topics covered in the DATAETHICS Summer School are:
- Data Ethics and Data Protection Legislation in Health Research & Biobanking
- Big data and Health Data challenges
- AI ethics – technological perspective
- Trustworthiness in intense data research
- Fundamentals of Big Data use, IA, and other data intensive frameworks models in (bio)medicine
OUR SPEAKERS
The expertise of the speakers covered a broad spectrum of research and application interests from bioethics, health policy and social studies of medicine, to cutting-edge genomics, analysis of large heterogeneous high-throughput data-sets and AI solutions for biomedicine.
The course featured lectures from prominent international speakers:
Prof. Oriol Pujol (University of Barcelona)
Dr Isa Houwink (Leiden University Medical Center) & Rick Overkleeft (4MedBox)
Prof Anne Hauschild (University Medical Center Göttingen)
Dr. Mahsa Shabani (University fo Ghent)
Dr Marco Roos (Leiden University Medical Center)
Veronika Popa (EURORDIS)
and more!
AWARD
Students participating in the DATAETHICS Summer School 2022 were awarded a certificate of participation. Furthermore, students received the DATAETHICS Open Badge for recognition of their qualifications, achieved via the practical exercise of applying the DATAETHICS training and knowledge in the process of the virtual collaboration.
This innovative certification method – the DATAETHICS Open Badge –allows the participants to digitally showcase the skills and competences they gained during the Winter School and the virtual exercise.